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RESOURCES...
GROWING UP WITH A DISABILITY - TRAVEL, SPORTS, AND OTHER FUN THINGS

GROWING UP WITH A DISABILITY

  • EXHALE
  • - for those 'coming of age' with a disability - has SUPER links! (website created and maintained by a teen with a disability)

  • THE RAMP AHEAD
  • - contains LOTS of information regarding growing up with a disability. The web site creator, a teen who also has cerebral palsy) also has stories written by other teens or kids with disabilities. A MUST see!


    JUST FOR KIDS!

  • ABILITY NETWORK'S YOUNG A-NET.....
  • This is one terrific place for kids and teens to visit! 'Ability Network' is Canada's cross-disability magazine.... the 'young A-Net' is the part within the magazine just for kids. At this site, you can read poems and stories, or look at art work created by kids who also have disabilities. Many of the kids share thoughts about having a disability within their work. You can even submit your own work!

  • ABILITY ONLINE SUPPORT NETWORK
  • - THIS is the place to go if you are interested in connecting with other kids who have disabilities. An EXCELLENT place to go!

  • ACE PLACE AWARDS
  • - Ever thought of developing your OWN web page? Go here to find links to kids whose pages have won awards! VERY neat site!

  • AUNT ANNIE'S CRAFT PAGE
  • - The emphasis of this page is on learning, creativity, and problem-solving while doing craft projects. Each project includes a variety of designs to choose from, patterns to print, and easy to follow instructions. Every project provides hours of enjoyment for both children and adults.

  • BANDAIDS AND BLACKBOARDS
  • - Have you ever been teased? Did you ever think that people don't understand how it feels to have a difference? This web site is for kids AND GROWNUPS to learn how to get along better. There are links (for everybody) about better ways to handle teasing and other hurtful things that happen in schools, but nobody seems to admit they really happen...

  • CALIFORNIA KIDS
  • - resources, activities and fun for kids in California

  • CARINGKIDS
  • - The CaringKids Discussion List CaringKids is a discussion list for kids (18 and under) who have family members or friends with life-threatening or debilitating disease. This list is a place for kids to talk to kids about their feelings and frustrations and give one another encouragement and support. If someone you care about has a serious illness, it can be hard to know how to help them. Maybe you have feelings or concerns about them that affect how you feel inside. Grownups don't seem to know what you need when you try to .... (see page for more information)

  • CHILDREN'S BOOKS ABOUT TEASING
  • - Here is a list of books parents and teachers may find valuable in helping children cope with the effects of being teased.

  • CHILDREN WITH DIABETES
  • - an online community for children and others affected by type 1 diabetes.

  • CONVOMANIA
  • - is a cool place where kids can meet online and share their stories, their illnesses and their challenges.

  • GREATKIDS NETWORK
  • is designed to honor the outstanding and often overlooked contributions kids make to our world. The project is made up of two parts: this World Wide Web site, created especially for children and teens, and a half-hour, weekly television series currently in development.

  • 100HOT KIDS
  • - is a list of the 100 most popular web sites for kids. Have YOU visited every single site?

  • KIDS AROUND THE WORLD
  • is a web site, started by a teen, for kids to meet other kids - from all around the world. You can do lots of things - chat with someone from far away, find a pen pal, even write a letter to someone who is sick or injured and needs some care.

  • NEUROSCIENCE FOR KIDS
  • - The smell of a flower - The memory of a walk in the park - The pain of stepping on a nail. These experiences are made possible by the 3 pounds of tissue in our heads...the BRAIN!! This home page has been created kids and teachers who would like to learn more about the nervous system. Enjoy the activities and experiments on your way to learn more about the brain and spinal cord.

    Are you a brother or sister of someone who has a disability? You don't have to be a little brother or sister, or a big brother or sister ... you can even be a grownup brother or sister to go to

  • THE SIBLING SUPPORT PROJECT.
  • Here you will find LOTS of information and help from others who probably understand some of your feelings or experiences.

  • SICKKIDS
  • SICKKIDS Discussion List SickKids is a discussion list for kids (18 and under) who are ill. It is a place for kids to talk about their feelings and frustrations. You can go straight to the point, or ask questions, or write poems and stories, and so on. If you have any trouble with using the list or the various commands, just ask for help by writing to the List owners at SickKids-Request@sjuvm.stjohns.edu. SickKids has a sister list, called CaringKids. CaringKids is for kids who are not ill themselves, but they ...(see page for more information)

  • SPORTS ILLUSTRATED FOR KIDS
  • - need I say more?

  • WINNERS ON WHEELS
  • is for kids who are interested in making a difference in their world, and use a wheelchair. There are 'circles' (groups) around the US and even in South Africa! You can learn more about WOW here. Maybe there's even a Circle near YOU!

  • WWW4KIDSZ
  • is a gigantic site just for kids ....... filled with lots of cool information, plus links to more fun sites. It also is part of "The Rail", a group of kid-oriented web sites.


    LEGAL RIGHTS AND RESPONSIBILITIES

    The

  • ABA COMMISSION ON MENTAL AND PHYSICAL DISABILITY LAW
  • - This site contains links to attorney who specialize in disability-law related issues, recent court decisions, and links to other disability law-related sites.

    The

  • ADA DOCUMENT CENTER
  • - This web site contains copies of the Americans with Disabilities Act of 1990 (ADA), ADA regulations, technical assistance manuals prepared by the United States Equal Employment Opportunity Commission (EEOC) or the United States Department of Justice(DOJ), and other technical assistance documents sponsored by the National Institute on Disability and Rehabilitation Research (NIDRR) and reviewed by EEOC or DOJ.

  • BAZELON CENTER -
  • The Judge David L. Bazelon Center for Mental Health Law is a nonprofit legal advocacy organization based in Washington D.C., named after the federal appeals court judge whose landmark decisions pioneered the field of mental health law. Today the Bazelon Center is the leading national legal advocate for people with mental illness and mental retardation.

  • EDLAW, Inc. -
  • a full service provider of information on education law located in Hollywood, Florida. This page should provide a starting point for basic legal information of use to special educators, parents and their advisors in meeting federal and state requirements for the education of students with disabilities. The texts of statutes and regulations referenced here are public information. We have posted them, therefore, to make them available at minimum cost and inconvenience.

  • LAW AND DISABILITY
  • - This is a list of several other disability law-related links.

  • LAW GURU.COM
  • - is part of the law offices of ESLAMBOLY & BARLAVI, in Los Angeles, CA. . Use this form to send them legal question relating to personal injury law, workers' compensation law, sexual harassment law, disability discrimination (Americans with Disabilities Act) law, The Family and Medical Leave Act (FMLA) and most other types of law (see below). See site for further information...

  • LEGAL INFORMATION ON DISABILITY ISSUES
  • - is from Jim Lubin's website... this list contains links to several other disability-related web sites.

    The

  • U.S. HOUSE OF REPRESENTATIVES INTERNET LAW LIBRARY - HANDICAPPED INDIVIDUALS AND THE LAW
  • - straight from Washington, D.C.!

    The

  • UNIQUE PEOPLE'S VOTING PROJECT
  • is a non-partisan organization devoted to empowering California's citizens with disabilities to vote - UP has compiled information regarding accessibility in voting for individuals with disabilities, and is actively searching for more participants.


    LITERATURE, MEDIA, AND OTHER THINGS...

  • ACCUFIND
  • - takes you to the right search engine if you don't know which one to use..

  • BOOKS ABOUT DISABILITY
  • - Here is a list of many books for adults and children - all 'disability-related'. Could be a good 'starting point' for anyone looking for something good to read!.......

  • DISABILITIES/HEALTH/MEDICAL NEWSGROUPS
  • - A 'newsgroup' is like a 'bulletin board' .... and there are literally THOUSANDS of them. Jim Lubin (once again!) has found the ones related to disabilities, health or medical issues and listed them here. Just click on one that interests you and read!

  • DISABILITIES/MEDICAL RELATED LISTS
  • - A 'listserv' is like an instant 'chain letter' - but much faster. People that are interested in a particular topic 'subscribe' (for free) and then get email (from a trickle to an avalanche, depending on the listserv!) Jim Lubin has not only given us THE places to go, he has also shown us how to make our own listserv!

  • FANLIGHT PRODUCTIONS
  • - Fanlight specializes in distributing educational videos on health related topics, focusing on health care, mental health, disabilities, gerontology, sexuality, family issues, and many more. The titles we represent have won top awards and are used in health and educational facilities nationwide.

  • FILMS INVOLVING DISABILITY
  • - This is a list of feature films which portray or include people with disabilities. Each film is critiqued by someone who appears to have a sense of 'disability awareness'. Includes 'oldies' as well as current films.

    HealthGate MEDLINE - MEDLINE is the database used by medical professionals - it includes citations and abstracts of relevant journal articles (FREE!)

  • HISTORY OF DISABILITIES AND SOCIAL PROBLEMS
  • - compiled by Gary Woodill, Ed.D. The bibliographies (soma materials are listed in French) presented here (collected between 1987 - 1988) were compiled for the purpose of encouraging and advancing the study of the history of disabilities and social problems. While this list is 10 years old, it presents a fascinating collection of disability-history related materials!

  • ON A ROLL - TALK RADIO ABOUT LIFE AND DISABILITY!
  • "Greg Smith rolls up to the mic every Sunday in his electric wheelchair. He has muscular dystrophy and only weighs 65 pounds. His deep, seasoned radio voice is passionate in it's purpose: empowering the individual to live as independently as possible in the mainstream of society. This is "must-hear-radio" for the 1/5 of the population that has disabilities (48.9 million Americans, US Census 1990), and their friends and families. And it is so energetic and unique that it captivates talk radio listeners who have no direct connection to disability. It airs Sunday evenings from 7-8 PM Eastern Time. It is broadcast live via satellite on Satcom C5, Transponder 15, channel 02-0 for radio stations across North America! AND - YOU CAN CATCH IT 'LIVE' ONLINE!


    MENTAL HEALTH

  • DAVID BALDWIN'S TRAUMA INFORMATION PAGE
  • - This is a particularly informative and deeply meaningful site for anyone who has experienced significant emotional or verbal abuse related to having a disability. There is an absolute ABUNDANCE of information. A MUST SEE for anyone who believes that prior experiences and feelings (surgeries, being teased, etc.) may still be affecting his or her life.

  • MENTAL HEALTH INTERNET RESOURCES
  • - has compiled a list of National Advocacy and Information Resources, including links to everything from Ahzheimer's Disease to Visual Impairment.

  • MENTAL HEALTH NET
  • - , the largest, most comprehensive guide to mental health online, featuring over 6,000 individual resources. This site covers information on disorders such as depression, anxiety, panic attacks, chronic fatigue syndrome and substance abuse, to professional resources in psychology, psychiatry and social work, journals and self-help magazines.

  • NATIONAL MENTAL HEALTH SERVICES KNOWLEDGE EXCHANGE NETWORK -
  • provides information about mental health via toll-free telephone services, an electronic bulletin board, and publications.

  • PSYCH CENTRAL: DR. JOHN GROHOL'S WEB PAGE
  • -a "one-stop index for psychology, support, and mental health issues, resources, and people on the Internet. Well organized and has lots of valuable links.

    if you are thinking about

  • SUICIDE
  • - read this first.... Emotional pain can be the most difficult and overwhelming of pains, and often the most lonely..... This web site is well written, candid, .... and can make a difference......


    PARENTS AND FAMILIES

  • ARCH NATIONAL RESOURCE CENTER FOR RESPITE AND CRISIS CARE
  • - This organization provides information and support regarding temporary relief for care givers and families who require care for children with disabilities, chronic or terminal illnesses, and/or to children at risk of abuse and neglect.

  • NATIONAL INSTITUTE ON LIFE PLANNING FOR PERSONS WITH DISABILITIES
  • NILP is a national organization dedicated to promoting transition, life and person centered planning for all persons with disabilities and their families. This web page provides information to help families obtain the latest information on transition, life and person centered planning, government benefits, advocacy, guardianship, aging, housing, supported employment, etc.

  • NATIONAL PARENT NETWORK ON DISABILITIES
  • - NPND shares information and resources in order to promote and support the power of parents to influence and affect policy issues concerning the needs of people with disabilities and their families.

  • OUR KIDS
  • - a web page devoted to raising kids with special needs (also has ACTIVE listserv)

  • PARENTS HELPING PARENTS
  • (San Jose,CA) (PHP) is a parent-directed family resource center serving children with special needs, their families and the professionals who serve them. PHP is one of the oldest and largest children's charities of its kind in the United States. We are the family resource center for Early Start services for Santa Clara County; a Parent Training and Information Center (PTI) for Northern California; the National Center for Parent-Directed Family Resource Centers in the United States; and the leading consultation and assistance agency for others starting or operating a parent-directed family resource center in the world.

  • THE SIBLING SUPPORT PROJECT.
  • Here families will find LOTS of information and help from others who probably understand some of the feelings or experiences that come with having a sibling with a disability.


    PUBLICATIONS

  • ABILITY NETWORK
  • - Canada's Cross Disability Magazine

  • DISABILITIES/HEALTH RELATED MAGAZINES/NEWSLETTERS
  • - as usual, an exhaustive list from Jim Lubin!

  • MAINSTREAM MAGAZINE -
  • For 20 years, MAINSTREAM has been advocating for disability rights. Produced by, for and about people with disabilities, MAINSTREAM covers news & current affairs, new products & technology, profiles of movers & shakers, education, employment, sexuality & relationships, housing, transportation, travel & recreation.

  • MY HANDI-CAPABLE REPORTER
  • - is based in Southern California, distributes over 100,000 newsletters each month - web site provides some articles, plus link to relieve one free edition

  • NEW HORIZONS NEWSLETTER
  • - newsletter for vent-dependant adults, developed, edited and published three times a year by Paula Howaniec. To me, this newsletter is proof of the possibilities that can happen when one has deeply rooted convictions about disability rights, plus access to communication tools.

  • NEW MOBILITY -
  • published in California, the magazine contains a diverse fare; web site has 'bookstores' with numerous excellent books available.

  • THE ABLE INFORMER -
  • an international resource newsletter for people with disabilities. Web site provides introduction to its many 'sections' (including 'business', 'classifieds', 'travel' and many more)

  • THE ELECTRIC EDGE
  • - disability rights advocacy 'zine, reminiscent of 'the Rag'


    TRAVEL, SPORTS, AND OTHER FUN THINGS

  • ACCESS-ABLE TRAVEL SOURCE
  • - If you are concerned about accessibility when travelling, see this web site! There are links to accessibility guides all around the world, plus practically everything related to travel one could expect.

  • AMERICAN ASSOCIATION FOR THERAPEUTIC HUMOR
  • - Seriously folks! We all NEED a sense of humor (and I can say THIS with a STRAIGHT FACE! :))

  • AXIS DANCE COMPANY
  • - (Oakland, CA) is dedicated to inspire the dialog between disabled and able-bodied people and aide the process of self-discovery through dance and creative movement activities. Besides producing dance performances, AXIS also offers movement workshops, performance labs, lecture demonstrations and community jams.

  • CALLAHAM ONLINE
  • - has a super cartoon each day!

  • DISABLED SPORTS/USA
  • - Founded by vets injured in the VietNam war, this organization has grown to develop sports-related programs and activities for individuals affected by a wide variety of disorders. There are local chapters and a host of other activities. Check out their web site!

  • E=MOTION, A DANCE COMPANY
  • - E=motion, a member of the Dance Force, Inc. family, is a small performance dance company formed in the summer of 1995 of dancers with and without disabilities. Developed out of a desire to share the talents of dancers with disabilities with the mainstream audience, the focus of E=motion is on dance skill and artistry. The fact that some of the dancers use wheelchairs is secondary: the wheelchair may lend additional movement possibilities to the dance choreography, but it is not a focal point of the dance troupe. The goal is to make the audience forget the wheelchair and focus on the dancers.

  • Courage HANDI-HAM system
  • - an organization dedicated to helping people with physical disabilities or sensory impairments to learn Amateur Radio. Some people join HANDI-HAMS to learn radio, and others join because they want to help. There are countless opportunities to visit first-hand with people at all points of the globe, to share experiences and opinions, to grow personally, to visit with friends and, when needed, to help your community by providing vital emergency public services. Almost anyone can become a ham, regardless of age, disability, previous training, or experience. Hams come from all walks of life, but have one common bond -- a fascination with Amateur Radio. We can help you study for the license examinations required to become an Amateur Radio Operator.

  • INTERNATIONAL WHEELCHAIR AVIATORS
  • - is a group of disabled and able bodied individuals who are interested in flying. Although powered airplanes dominate their interest, some members have flown and continue to fly sailplanes, ultra-lights, hang-gliders, para-planes and other forms of aircraft. The majority of members have spinal cord and polio injuries. The purpose of IWA is to provide handicapped flying information to those who are interested. IWA publishes a bi-monthly newsletter telling of the current achievements and activities of its members.

    The

  • NATIONAL ARTS AND DISABILITY CENTER
  • (NADC) is an information, training and resource center funded by the Administration on Developmental Disabilities and supported by the University of California, at Los Angeles (UCLA), University Affiliated Program. The mission of the NADC is to promote the full inclusion of children and adults with disabilities into the visual, performing, media, and literary arts communities.

  • NATIONAL SPORTS CENTER FOR THE DISABLED
  • - ,located in Winter Park, Colorado, continues to be the largest and most successful outdoor recreation program in the world for individuals with disabilities. This program teaches recreational and competitive skiing to thousands of children and adults each winter as well as offering a full range of outdoor activities in the summer.

  • UNITED STATES CEREBRAL PALSY ASSOCIATION
  • - provides both individualized sports training and competitive opportunities for atheletes with cerebral palsy, or other related challenges, such as traumatic brain injuries or strokes. Their guiding philosophy, "equal opportunity for all", is personified in their eight level classification system. This system, based on the functional level of the athlete, provides a fair and equitable starting point for competitions.

  • VAN GOGH
  • - THE BAND - Here is a group that has gotten TONS of rave reviews - check out their web site, hear their music and maybe even order a CD! By the way, some of the band members just happen to use wheelchairs (and are strong advocates for the disABILITY community)


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